Important Safety Information

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Discussing Primary Periodic Paralysis with your family

Talking about PPP with your family can be hard, but sharing your experience can empower your family. We can help you get the conversation started.

PPP is usually an inherited condition1

Your family members may not know they have PPP. Or, if they’re experiencing symptoms, they may not realize that those symptoms could be caused by PPP.

If you’re worried that someone in your family may have PPP, you can pass along facts and useful information in a sensitive way. As your family facilitator, you can help guide their path by encouraging them to discuss PPP with their doctor.

Get the Family Facilitator guide

GENETIC TESTING

Uncover periodic paralysis in your family

If you think you or your family members may have PPP, a genetic test can help shorten the journey to diagnosis and speed up the path to developing a treatment plan.2

Genetic testing does not capture all the genes associated with PPP. It can only confirm a PPP diagnosis in about 70% of people. The remaining 30% of people may have a negative or inconclusive test, but still have PPP.

Xeris Pharmaceuticals® offers a no-cost Periodic Paralysis genetic test to:
  • People with episodic muscle weakness or temporary paralysis associated with common triggers of PPP
  • First-degree family members of anyone diagnosed with PPP
Get the Genetic Testing Guide
Get the Genetic Testing Guide

References

  1. Fontaine B, Phillips LH 2nd. A newly approved drug for a rare group of diseases: dichlorphenamide for periodic paralysis. Neurology. 2016;86:1366-1367.
  2. Statland JM, Fontaine B, Hanna MG, et al. Review of the diagnosis and treatment of periodic paralysis. Muscle Nerve. 2018;57:522-530.

INDICATION AND IMPORTANT SAFETY INFORMATION — READ MORE

Indication and Important Safety Information

 

What is KEVEYIS?

KEVEYIS (pronounced keh-VAY-iss) (dichlorphenamide) is a prescription drug used to treat primary hyperkalemic periodic paralysis, primary hypokalemic periodic paralysis, and other similar diseases.

 

What should you tell your healthcare provider before taking KEVEYIS?

Tell your doctor if you are allergic to dichlorphenamide or other sulfa drugs; if you take high doses of aspirin, or if you have lung or liver disease; if you are pregnant, plan to become pregnant, or are breastfeeding or plan to breastfeed.

 

What should you know about KEVEYIS?

  • Severe allergic and other reactions have happened with sulfonamides (drugs such as KEVEYIS) and have sometimes been fatal. Stop taking KEVEYIS at the first sign of skin rash, swelling, difficulty breathing, or any other unexpected side effect or reaction, and call 911 right away.
  • Tell your healthcare provider if you take aspirin or if another healthcare provider instructs you to begin taking aspirin. High doses of aspirin should not be taken with KEVEYIS.
  • KEVEYIS can cause your body to lose potassium, which can lead to heart problems. Your healthcare provider will measure the potassium levels in your blood before you start treatment and at certain times during treatment.
  • Tell your healthcare provider about all other prescription and over-the-counter medicines you take, including supplements, as some medicines can interact with KEVEYIS.
  • While taking KEVEYIS, your body may produce too much acid or may not be able to remove acid from the body. Your healthcare provider may run tests on a regular basis to check for signs of acid buildup.
  • KEVEYIS may increase your risk of falling. Tell your healthcare provider right away if you experience a fall while taking KEVEYIS.
  • The risks of falls and acid buildup are greater in elderly patients.
  • It is not known whether KEVEYIS is safe or effective for people younger than 18 years of age.

 

What are the most common side effects with KEVEYIS?

The most common side effects are a feeling of numbness, tingling or burning (“pins and needles”) in the toes, feet, hands or fingers; trouble with memory or thinking; feeling confused; and unpleasant taste in the mouth.

These are not all of the possible side effects of KEVEYIS. Call your healthcare provider for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.

Please see Full Prescribing Information.

Xeris

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